Robert’s daughter, Sarah, was diagnosed with Stage 4 neuroblastoma in December 1999 when she was seven years old - and sadly passed away a few years later at the age of 11. Nearly 20 years on since his loss, Robert remembers Sarah and shares her story here…
At age 9 Violet told her mum that she had a monster in her tummy, prompting her mum Laura to seek medical support. After an ultrasound it was discovered Violet had neuroblastoma. Now having reached NEAD (no evidence of active disease) Laura reflects on the last year and the fears she still carries for her daughter’s health.
Max started chemotherapy on his 2nd birthday, after suffering with ‘dancing eye syndrome’ as a result of a neuroblastoma. Now turning 3 he has finished treatment and is awaiting results - having also raised over £10,000 for Neuroblastoma UK.
Tilly was diagnosed with Stage 4 Neuroblastoma in November 2021 and sadly passed away in September 2022 at the age of four. Tilly’s dad, Jonathan, shares her story here…
After experiencing a lack of appetite, temperatures, lethargy, sickness and numerous trips to the GP, Cara was diagnosed with neuroblastoma.
Despite 19 months of treatment, Cara relapsed three months after completing front-line treatment. She was just three years old when she passed away in February 2020.
Donna had a feeling there was something seriously wrong with her daughter, Sophie, but it took several visits to the doctor before she was finally diagnosed with neuroblastoma at the age of six months. Now aged four, Sophie is doing well and looking forward to starting school in September. Donna shares her story here…
Rory was diagnosed with stage 4s neuroblastoma when she was just two weeks old and was given a 30% chance of survival. She not only had to fight cancer, but sepsis too. In May 2024 Rory rang the bell and has officially been declared cancer free, ready to start school this August.
Christopher was 36 years old when he was diagnosed with Neuroblastoma for the first time. He talks about the isolation of having a cancer predominantly diagnosed in children, as well as his efforts to live each day as it comes.
25-year-old Charlotte was diagnosed with stage 4 neuroblastoma when she was just 12 weeks old. This summer, she will be representing Team GB, playing basketball in the Paralympic Games in Paris. Charlotte shares her story here…
Alex was diagnosed with neuroblastoma in 2010 and sadly passed away in January 2013 when he was five-years-old. Alex’s dad, Ben, shares his story…
George, aged three, was diagnosed with stage four neuroblastoma in April 2020.
“When George was diagnosed, it really helped to read positive stories so I hope our story helps other families like ours to see it’s not all doom and gloom.” His mum Roxanne shares their story.
Antonya’s son, Hamish, was five years old when he was diagnosed with Stage 4 Neuroblastoma in 1979 and died in December 1981 at the age of seven. Following his death, Antonya, along with other bereaved parents, helped set up the Neuroblastoma Society, now Neuroblastoma UK. Over 40 years on, and now facing her own battle with terminal cancer, Antonya shares Hamish’s story…
Carolyn is supporting Neuroblastoma UK by taking on the Glasgow Kiltwalk 2024 in memory of her son, Matthew, who sadly passed away in November 2022 at the age of two and a half. She shares Matthew’s story here…
Niamh, now 25 years old, was diagnosed with neuroblastoma when she was 15.
In 2020, her cancer returned and she is once more undergoing treatment. She’s currently on a research drug trial but is doing well. This is her story.
Aurora employee, Jody, nominated Neuroblastoma UK to be one of the company’s charity partners for this year, after sadly losing her six-month-old daughter, Ellie, to neuroblastoma in 2011. Jody shares her story here…
When Ari was diagnosed with neuroblastoma at the age of 13, it came as a huge shock. She had never experienced any symptoms. Now, a year on since her diagnosis - and as part of Teenage And Young Adult Cancer Awareness Month - her mum, Mattea, shares her story…
Grace was diagnosed with neuroblastoma two weeks after her 16th birthday in May 2021. Now 18, she has recently finished treatment and is training to be a paediatric nurse. Grace shares her story to mark Teenage And Young Adult Cancer Awareness Month…
Harper was a year old when she was diagnosed with Stage 4 High Risk Neuroblastoma in April 2023. A year on since her diagnosis, her family are hopeful that, with further treatment, Harper will remain healthy and happy. Harper’s mum, Jenny, shares her story here…
On this important day, we would like to share with you a story about a beautiful little boy, Spencer, who sadly passed away in 2007 from neuroblastoma. Spencer’s mum, Amanda, has kindly shared this story to help raise awareness about the drastic need for new, more effective and less punishing treatments for neuroblastoma.
Hayley has kindly shared a heart-warming story about her son, Alex, who was diagnosed with neuroblastoma at the age of two. Alex’s story demonstrates just how important treatments and research can be for the lives of children with neuroblastoma and their families.
After experiencing a lack of appetite, temperatures, lethargy, sickness and numerous trips to the GP, Cara was diagnosed with neuroblastoma.
Despite 19 months of treatment, Cara relapsed three months after completing front-line treatment. She was just three years old when she passed away in February 2020.
Isobel, Cara’s mummy, shares their story to help other parents spot the signs of this cancer earlier.
Zahra was diagnosed with neuroblastoma when she was just two weeks old. Now 21, she recently graduated with a law degree! This Childhood Cancer Awareness Month, Zahra shares her story to help other families currently experiencing neuroblastoma. “If my story can offer solace, inspiration, or guidance to just one person or family, I find immense fulfilment in knowing that my experiences have made a positive impact. “
Reggie was diagnosed with stage three neuroblastoma in November 2020 after he became unwell with a high temperature and constipation. Doctors initially suspected a tummy bug or appendicitis. But a scan revealed a tumour attached to his adrenal gland. Just one month after he rang the end of treatment bell in June 2021, Reggie relapsed. He sadly passed away on 17th July 2021. Reggie’s mum Jo shares their story.
Apollonia (Apple) was diagnosed with stage four, high risk neuroblastoma on 9th August 2021. She has been in remission since November 2022 and is a happy, healthy six year old. “Thanks to the research funded by Neuroblastoma UK, our Apple has a chance now.” Anthea, Apple’s mum, shares their story.
“My son Oscar was diagnosed with intermediate risk L2 neuroblastoma when he was five months old. Oscar needed several rounds of very strong chemo and more surgery to remove most of the tumour. But nothing has ever stopped him and in August we celebrated Oscar’s third birthday. There is hope.”. Joanne, Oscar’s mummy, shares their story.
Chloe was diagnosed with stage 3 neuroblastoma in 2010 when she was fifteen years old.
Six years later she qualified as a children’s nurse, now works on a paediatric ward and has even published a book about her experience! Chloe has shared her amazing story as part of Teenage and Young Adult Cancer Awareness Month.
Ellie was diagnosed with stage 3 neuroblastoma when she was 13 years old, after an unusual lump was found in her abdomen.
Now cancer-free for five years, Ellie is currently completing a Sports Science degree, is a part-time gymnastics coach and has recently become a volunteer at Neuroblastoma UK. Ellie shares her story to inspire other teenagers with cancer.
“Our beautiful daughter Georgia was born in May 2004 - she should be celebrating her 18th birthday this month.
But in October 2016, at the age of 12, our wonderful, happy child passed away after being diagnosed with neuroblastoma. We set up Georgia’s Fund to help fund research into neuroblastoma, and have raised more than £200,000 so far.” Georgia’s dad Richard shares her story.
Lily was diagnosed with stage four, intermediate risk neuroblastoma as a baby.
“Because of her treatment, Lily now has tinnitus and ankle-tightness. She needs to do regular exercises and wear in-soles but she never moans and always gets on with things. Even when she’s in pain, she never complains or gives up. Now at 11 years old, she loves to run, trains every week and wants to be the next Jessica Ennis!” Lily’s mum Angela tells their story.
Just weeks before her 2nd birthday, Beth was diagnosed with stage four high risk neuroblastoma.
But two years after her initial diagnosis and being clear of her cancer for six months, Beth relapsed twice. On Christmas Eve 2019, Beth quietly passed away. She was five years old.
Jill, Beth’s mummy shares their story.