Privacy Policy
At Neuroblastoma UK we are committed to protecting your personal information and being transparent about what we do with it.
This Privacy Policy applies to information we collect about individuals who interact with our organisation, and how we use this personal information in accordance with applicable laws concerning the protection of personal information.
This Privacy Policy explains:
How we may obtain your personal information
What personal information we collect
How we use your personal information
When and who we share your information with
How we use cookies to improve your use of our website
Your choices regarding the information we hold about you
By providing us with your personal information, you agree to its use as set out in this policy.
If you have any questions about the information provided in this Privacy Policy, please contact us.
Neuroblastoma UK, 7-14 Great Dover Street, London, SE1 4YR
020 3096 7890
WHAT PERSONAL INFORMATION WE COLLECT
Personal information is information that can be used to identify you. Personal information we might collect from you could include your name, email address, postal address and telephone number.
If you are donating to Neuroblastoma UK, we may also collect payment information, your date of birth and whether you are a UK tax payer so that we can claim Gift Aid.
There are certain categories of personal information that are more sensitive and are recognised by data protection laws as sensitive personal information. This may include health information, racial or ethnic origin, religious beliefs or other beliefs of a similar nature. We will only collect sensitive personal information like this where there is a clear need for us to do so. Before we collect this sensitive information, we will make it clear what information we will be collecting and the purpose for why we need to collect it.
HOW WE OBTAIN YOUR PERSONAL INFORMATION
Below is a list of ways that we may obtain personal information.
When you give it to us directly
You may give us your information in the following ways:
When making a donation to us or,ordering products from our online shop,
When signing up to take part in a fundraising event
When signing up to receive our newsletter
When sharing your story with us
When you give permission to other parties to share it with Neuroblastoma UK
Your information may be shared with us by fundraising sites such as Just Giving, Enthuse or PayPal Giving Fund. Your information may also be shared with us by independent event organisers such as Action Challenge or platforms such as Just Running.
You should check the Privacy Policies of these parties when you provide your information to them, to understand how they will process your information.
We may also obtain your information from a family member or friend who has, for example, ordered merchandise on your behalf or has made a donation in your name and asked us to write to you to acknowledge the donation name in your name. In these instances, your information will only be used for the purposes it was provided to us for, and you will not be opted into further contact from us as a result of this.
When information is publicly available or from other external sources.
We may combine information that we already hold on you with information that is available publicly or from external sources. This information may include information on previous donations you have made.
Information we get from you that is publicly available may include information from sources such as Companies House or information that has been published in articles and newspapers.
As a charity, we take appropriate steps to know who our donors are, particularly where donations of significant sums are made. We may undertake research including accessing information that is already publicly available on prospective donors and partners to ensure it would be right for us to accept their support.
HOW WE USE YOUR INFORMATION
We will only use your data in a manner that is appropriate considering the basis on which that data was collected.
We will use your information to provide you with the services you have requested and reply to enquiries you have sent us.
We will use your personal information to keep a record of your relationship with us and for internal administrative purposes such as our accounting records.
We will use your personal information to claim Gift Aid on your donations.
With your consent, we will use your personal information to let you know about the charity’s work and about how you can help us – for example about volunteering opportunities, fundraising activities and how to donate.
We will also use your personal information for statistical analysis about how we can best meet your needs.
We may also use your personal information for other purposes which we specifically notify you about and, where appropriate, obtain your consent
MARKETING COMMUNICATIONS
With your consent, we may contact you with information about our work and how you can support our work. This information may include details about campaigns and how you can donate, fundraising activities and volunteering opportunities. We may also on occasion include information on partner organisations who support us in our work.
You can let us know if you would prefer not to receive these communications at any time by emailing hello@neuroblastoma.org.uk or calling 020 3096 7890
SHARING YOUR INFORMATION
We will not sell your details to any third parties, but sometimes we may need to share your information with trusted service providers who are authorised to act on our behalf. These service providers may include event organisers if you are taking part in an event such as the London Marathon.
We may also pass your data to third parties in the following circumstances:
You have provided your explicit consent for us to pass data to a named third party
We are using a third party purely for the purposes of processing data on our behalf
We are required by law to share your data
In addition, we will only pass data to third parties outside of the EU where appropriate safeguards are in place as defined by Article 46 of the General Data Protection Regulation.
HOW WE USE COOKIES
A cookie is a small file of letters and numbers that is downloaded onto your computer when you visit a website. Cookies are used by many websites and can do a number of things, e.g. remembering your preferences, recording what you have put in your shopping basket, and counting the number of people looking at a website.
Where cookies are used to collect personal data, we use these inline with other personal data that we collect as outlined above.
However, we also use some cookies that do not collect personal information but that do help us collect anonymous information about how people use our website. We use Google Analytics for this purpose.
Google Analytics generates statistical and other information about website usage by means of cookies, which are stored on users' computers. The information collected by Google Analytics about usage of our website is not personally identifiable. The data is collected anonymously, stored by Google and used by us to create reports about website usage. Google's privacy policy is available at http://www.google.com/privacypolicy.html.
For more information about cookies, including how to manage or delete them, please see http://www.aboutcookies.org/
LINKS
This website may contain links to other websites that are not owned or managed by Neuroblastoma UK. We cannot be held responsible for the privacy of information collected by websites not managed by us.
IF YOU’RE 18 OR UNDER
If you are aged 18 or under, you must get your parent/guardian’s permission before you provide any personal information on our website.
ACCESSING AND UPDATING YOUR PERSONAL INFORMATION
You can request access to any information we hold about you by contacting us at Neuroblastoma UK, 7-14 Great Dover Street, London, SE1 4YR.
If you need to let us know about any changes to your personal details that we hold on you, such as your contact details, please contact us by email at hello@neuroblastoma.org.uk or calling 020 3096 7890.
You can also let us know if you no longer wish to receive marketing or fundraising communications from us by contacting us via the communications methods above.
CHANGES TO THIS POLICY
We may modify this Privacy Policy from time to time and will publish the most current version on our website. If a modification meaningfully reduces your rights, we'll notify people whose personal data we hold and is affected.
This Privacy Policy was last updated November 2023.