Share your story

Many of our supporters have been affected by neuroblastoma, whether through a personal experience, a loved one, or a friend. Sharing these stories can inspire others to support, raise awareness of neuroblastoma and help other families. If you have a story you'd like to share, and feel ready, we encourage you to fill out the form below.

Your story could highlight a child’s journey with neuroblastoma, your own experience, your fundraising story or any other related experiences.

Your Privacy

The information that you provide here will only be used to contact you about sharing your story in our communications work. We will not pass the details recorded on this form on to any other organisation without your permission. We will not store your data for any longer than five years without further consent.

Please complete this form

Your contact details

First Name

Last Name

Telephone number

Country

(###)

###

####

Address

Address 1

Address 2

City

State/Province

Zip/Postal Code

Country

Your child's details (if applicable)

First Name

Last Name

Date of birth

YYYY

Date of diagnosis

YYYY

Your relationship to child

Does your child have siblings?

Yes

Do you wish to remain anonymous?

You can choose to have your real name published with your story or remain anonymous (in which case, we will use a false name). Please tick one of the following options:

I am happy for my real name to be used

I do not want my real name to be used

Please tick this box if you do NOT want to be featured in imagery or video footage

Are there any identifying features you do NOT want included in our communications work?

For example, your location or the age of your children, name of siblings etc.

Details of diagnosis and treatment - What symptoms did you / your child present with?

We thought it might be helpful to offer some suggestions about what information you may want to include. This will enable us to provide a full story surrounding your individual experience, which may help others. Please let us know if there are any ways in which you do NOT wish to be represented or described

What stage / risk group were you / your child diagnosed with?

Name of hospital where you/your child was diagnosed and / or treated at

What treatment plan did you / your child have?

Where was the treatment carried out?

How long did treatment last?

What side effects did you/ your child experience and how were / are these managed?

Have you been involved in any neuroblastoma research trials? If so, please provide more details.

Have you been involved in any fundraising for Neuroblastoma UK?

If yes please provide details.

Has your workplace supported your fundraising efforts in any way? If so please provide details.

In your words

We appreciate it is difficult to summarise your experience, so please use as many words as you would like. We may then edit your story to make it suitable for our website, social media, press releases etc or select particular quotes. We will share the edited version with you and ask for your consent before publishing.

Please write a brief description of your photo including dates

Share your story

Your Privacy

Please complete this form

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