Latest News, Grants & Research Reports
Read our latest news, blog posts and research updates right here
A potential new treatment for neuroblastoma
We welcome the news that a potential new treatment for children with neuroblastoma will be advanced to clinical trial and reach more young cancer patients.
Researchers have found an indirect way to target N-Myc, a gene that occurs in aggressive forms of neuroblastoma. They found that a new drug, fadraciclib, is effective at blocking N-Myc activity by switching off the production of N-Myc and a clinical trial for children with high-risk neuroblastoma is due to open by the end of 2020.
September Research News
Read the latest neuroblastoma news from September.
New insights into neuroblastoma could help better tailor treatment for children affected by this rare and aggressive cancer.
Accelerating drug development for neuroblastoma
An international forum of leading scientists from the UK, Europe and USA, funded by national charity Neuroblastoma UK, prioritises drug development and strategies for new treatment trials for children with neuroblastoma.
In the September edition of European Journal of Cancer, Dr Lucas Moreno from Vall d’Hebron Hospital, Barcelona, and a team of international scientific and clinical experts published an agreed list of genetic targets and drugs that should be advanced for early-phase paediatric clinical trials, following the second Neuroblastoma New Drug Development Strategy (NDDS) forum.
Exclusive t-shirts to help fight childhood cancer
To mark Childhood Cancer Awareness Month, we’ve collaborated with established and emerging artists to create a range of limited edition t-shirts to help fight childhood cancer.
The exclusive, limited edition t-shirts feature designs by a notable line-up including Nat Bowen, Luca Bornoffi, Rex Southwick, Crystal Fischetti and Emily Sutton, hotly-tipped by Tatler magazine to be one of the new ‘greats’ of the art world.
Corporate challenge raises £25,000
On 28th May 2020, hundreds of people from the investment industry took part in Citywire’s annual charity run.
The virtual challenge raised over £25,000 for Neuroblastoma UK and Saint Francis Hospice.
Layla goes to great lengths to raise £1000
Layla Kirk, aged nine from Winchmore Hill in Enfield raised an incredible £1,000 by having 16 inches cut from her long locks during lockdown!
Layla chose to support Neuroblastoma UK after hearing about family friends who lost their son to neuroblastoma when he was just five years old.
Fifty runners race for Grace
This October, an incredible team of 50 mums and dads hope to run the Beachy Head Marathon in memory of five year old Grace.
The team are raising money for Neuroblastoma UK and Shooting Star Children’s Hospice.
Grace's Racers
Ian is a doting dad to three year old Grace, who was diagnosed with stage 4 high-risk neuroblastoma in 2019.
With a team of eight family and friends, Ian is cycling 100 miles to raise money for Neuroblastoma UK.
Press release: Children’s cancer charity Neuroblastoma UK welcomes new Trustee
A mother whose two year old daughter passed away after being diagnosed with neuroblastoma has been appointed as a Trustee at Neuroblastoma UK.
Carolyn Jackson from Kent said, “I am proud and honoured to join Neuroblastoma UK on their Board of Trustees. Neuroblastoma UK is an amazing charity which I have supported since our daughter Florence was diagnosed with neuroblastoma in 2015.”
SIOPEN High-Risk Neuroblastoma Clinical Trial 2 to open in the UK in 2021
Neuroblastoma UK with Solving Kids’ Cancer has awarded a grant of £609,762.40 to enable the SIOPEN High-Risk Neuroblastoma Clinical Trial 2 (HR-NBL2) to open in the UK. The trial is anticipated to open in early 2021.
This Phase 3 clinical trial will offer children in the UK, with a diagnosis of high-risk neuroblastoma, to have the same opportunities as children across Europe and take part in this pan-European study, enabling a series of important randomised questions to be answered within the overall framework of the trial.